A History of Caring for Dying Patients in America
Emily K. Abel is professor emerita and research professor at the University of California, Los Angeles, Fielding School of Public Health.
- Hardcover: 240 pages
- Publisher: Johns Hopkins University Press (April 2 2013)
- Language: English
- ISBN-10: 1421409194
- ISBN-13: 978-1421409191
At the turn of the twentieth century, medicine's imperative to cure
disease increasingly took priority over the demand to relieve pain and
suffering at the end of life. Filled with heartbreaking stories, "The
Inevitable Hour" demonstrates that professional attention and resources
gradually were diverted from dying patients. Emily K. Abel challenges
three myths about health care and dying in America. First, that medicine
has always sought authority over death and dying; second, that medicine
superseded the role of families and spirituality at the end of life;
and finally, that only with the advent of the high-tech hospital did an
institutional death become dehumanized. Abel shows that hospitals
resisted accepting dying patients and often worked hard to move them
elsewhere. Poor, terminally ill patients, for example, were shipped
from Bellevue Hospital in open boats across the East River to
Blackwell's Island, where they died in hovels, mostly without medical
care. Some terminal patients were not forced to leave, yet long before
the advent of feeding tubes and respirators, dying in a hospital was a
profoundly dehumanizing experience. With technological advances, passage
of the Social Security Act, and enactment of Medicare and Medicaid,
almshouses slowly disappeared and conditions for dying patients
improved-though, as Abel argues, the prejudices and approaches of the
past are still with us. The problems that plagued nineteenth-century
almshouses can be found in many nursing homes today, where residents
often receive substandard treatment. A frank portrayal of the medical
care of dying people past and present, "The Inevitable Hour" helps to
explain why a movement to restore dignity to the dying arose in the
early 1970s and why its goals have been so difficult to achieve.
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