Symposium
Memory Lives On: Documenting the HIV/AIDS Epidemic is an interdisciplinary symposium exploring and reflecting on topics related to archives and the practice of documenting the stories of HIV/AIDS.
The task of documenting the history of HIV/AIDS and thinking about the present and future of the epidemic is daunting. The enormity and complexity of the stories and perspectives on the disease, which has affected so many millions of patients and families around the world, present significant challenges that demand continual reexamination. Questions of “what do we collect and from where” and “whose stories do we know best.” The ways in which we handle documentary evidence and produce knowledge from that evidence has profound effects on a huge range of social, economic and health outcomes. In examining and reflecting on our knowledge of the history of the HIV/AIDS epidemic and its future, we hope to improve our understanding of the true effects of the disease, and what it can teach us about future epidemics.
The Symposium will take place in Byers Auditorium in Genentech Hall at the UCSF Mission Bay Campus in San Francisco, October 4th and 5th 2019. The program will be an afternoon session and evening reception the first day, followed by a full day of presentations the second.
Friday October 4, 2019
Opening Remarks
Dr. Paul Volberding
Keynotes
The Importance of Biomedical Science in Controlling Epidemics
Dr. Jay Levy
Panel 1: Silent No More
Invisible in a Time of Crisis: Women, Surveillance Definitions, and Rhetorical Possibilities in the AIDS Epidemic’s First Decade
Hillary Ash, University of Pittsburgh
Pint-size Attention: Why Histories of AIDS in the United States need to include Children
Jason Chernesky, University of Pennsylvania, History and Sociology of Science
Look Back in Anger: Hemophilia-AIDS Activism and the Paradox of Revenge-Effects Hemophilia
Stephen Pemberton, New Jersey Institute of Technology
Undoing NostalgiAIDS: Viewing and Thinking Differently About AIDS Documentaries
Alberto Sandoval-Sanchez, Bennett Boskey, Distinguished Visiting Professor of Latina/o Studies at William College and Emeritus Professor of Latina/o Studies at Mount Holyoke College
Panel 2: AIDS in San Francisco
Love is Stronger than Death: Making Meaning of AIDS in the Sermons of Rev. Jim Mitulski
Lynne Gerber, Independent Scholar
Breaking Through the Break-Up: Investigating “The Split” Between ACT UP San Francisco and ACT UP Golden Gate
Eric Sneathen, University of California, Santa Cruz; GLBT Historical Society
Documenting Discrimination: Lorraine Day, M.D. as Historical Subject, Bioethical Case Study, and Ongoing Threat
Andrea Milne, Case Western Reserve University
Some Beauty and Meaning from These Ashes: AIDS, Intimacy, and Everyday Experience in 20th Century America
Maya Overby Koretzky, History of Medicine Department, Johns Hopkins University School of Medicine
Saturday October 5, 2019
Panel 3: Biomedical Research
Methods Matter: Equipoise along the pathway from early epidemic HIV research methods to implementation science methods focused on health disparities
Margaret Handley, UCSF Faculty in Epidemiology and Biostatistic and Medicine at the Center for Vulnerable Populations at ZSFGH; Co-Director UCSF Program in Implementation Science
I ain’t ready to die: HIV and Aging among Black Men who have sex with Men
Judy Tan, Division of Prevention Science | University of California, San Francisco Center for AIDS Prevention Studies (CAPS) | UCSF Prevention Research Center
A Historical Perspective on Contact Tracing During the HIV Epidemic
Arthur Amman, Founder Global Strategies for HIV Prevention, Global Health Sciences Affiliate Faculty Member, University of California, San Francisco Medical Center; Ethics in Health
Three studies in San Francisco — the AIDS cohort studies of 1983
Andrew Moss, UCSF Emeritus Professor of Epidemiology
Panel 4: Silences in the History and the Archive
Privilege and Silence: ACT UP, the Majority Action Committee, and Insurgent Transcripts of the AIDS Clinical Trial Groups
George Aumoithe
Obituary Parlor Games: Collecting and Analyzing Obituaries as Sources for Understanding the AIDS Epidemic
Elizabeth Alice Clement
Beyond Formal Equality: Closeted Bureaucrats, AIDS Policy-making and the Straight State in California
Stephen Colbrook
This panel brings together four papers focusing on the theme of silence in the historical narratives of AIDS. In addition to remedying those silences, the papers make connections between them and the gaps in the archival materials, arguing for an expansion of the kinds of materials preserved in collections.
Panel 5: AIDS and Education
Mobilizing the Archive: HIV/AIDS and the Multimedia Experience in the Classroom and Beyond
Sally Smith Hughes, reading a paper by Paul Burnett, with Roger Eardley-Pryor
Oral History Center, Bancroft Library, UC Berkeley
Embedding HIV into the Undergraduate College Course
Shan-Estelle Brown, Assistant Professor of Anthropology. Co-coordinator, Global Health Program, Rollins College
Panel 6: AIDS and the Power of Art
Documenting from Inside the Pandemic: AIDS and the Power of Art
Nancer Lemoins, KALA Institute
Sharon Siskin
Jeannie O’Connor
Archive as Cure: The Promises of Visual AIDS Activist Archiving
Marika Cifor, Information School, University of Washington
Closing Remarks
Dr. Monica Ghandi
Dr. Paul Volberding
Keynotes
The Importance of Biomedical Science in Controlling Epidemics
Dr. Jay Levy
Panel 1: Silent No More
Invisible in a Time of Crisis: Women, Surveillance Definitions, and Rhetorical Possibilities in the AIDS Epidemic’s First Decade
Hillary Ash, University of Pittsburgh
Pint-size Attention: Why Histories of AIDS in the United States need to include Children
Jason Chernesky, University of Pennsylvania, History and Sociology of Science
Look Back in Anger: Hemophilia-AIDS Activism and the Paradox of Revenge-Effects Hemophilia
Stephen Pemberton, New Jersey Institute of Technology
Undoing NostalgiAIDS: Viewing and Thinking Differently About AIDS Documentaries
Alberto Sandoval-Sanchez, Bennett Boskey, Distinguished Visiting Professor of Latina/o Studies at William College and Emeritus Professor of Latina/o Studies at Mount Holyoke College
Panel 2: AIDS in San Francisco
Love is Stronger than Death: Making Meaning of AIDS in the Sermons of Rev. Jim Mitulski
Lynne Gerber, Independent Scholar
Breaking Through the Break-Up: Investigating “The Split” Between ACT UP San Francisco and ACT UP Golden Gate
Eric Sneathen, University of California, Santa Cruz; GLBT Historical Society
Documenting Discrimination: Lorraine Day, M.D. as Historical Subject, Bioethical Case Study, and Ongoing Threat
Andrea Milne, Case Western Reserve University
Some Beauty and Meaning from These Ashes: AIDS, Intimacy, and Everyday Experience in 20th Century America
Maya Overby Koretzky, History of Medicine Department, Johns Hopkins University School of Medicine
Saturday October 5, 2019
Panel 3: Biomedical Research
Methods Matter: Equipoise along the pathway from early epidemic HIV research methods to implementation science methods focused on health disparities
Margaret Handley, UCSF Faculty in Epidemiology and Biostatistic and Medicine at the Center for Vulnerable Populations at ZSFGH; Co-Director UCSF Program in Implementation Science
I ain’t ready to die: HIV and Aging among Black Men who have sex with Men
Judy Tan, Division of Prevention Science | University of California, San Francisco Center for AIDS Prevention Studies (CAPS) | UCSF Prevention Research Center
A Historical Perspective on Contact Tracing During the HIV Epidemic
Arthur Amman, Founder Global Strategies for HIV Prevention, Global Health Sciences Affiliate Faculty Member, University of California, San Francisco Medical Center; Ethics in Health
Three studies in San Francisco — the AIDS cohort studies of 1983
Andrew Moss, UCSF Emeritus Professor of Epidemiology
Panel 4: Silences in the History and the Archive
Privilege and Silence: ACT UP, the Majority Action Committee, and Insurgent Transcripts of the AIDS Clinical Trial Groups
George Aumoithe
Obituary Parlor Games: Collecting and Analyzing Obituaries as Sources for Understanding the AIDS Epidemic
Elizabeth Alice Clement
Beyond Formal Equality: Closeted Bureaucrats, AIDS Policy-making and the Straight State in California
Stephen Colbrook
This panel brings together four papers focusing on the theme of silence in the historical narratives of AIDS. In addition to remedying those silences, the papers make connections between them and the gaps in the archival materials, arguing for an expansion of the kinds of materials preserved in collections.
Panel 5: AIDS and Education
Mobilizing the Archive: HIV/AIDS and the Multimedia Experience in the Classroom and Beyond
Sally Smith Hughes, reading a paper by Paul Burnett, with Roger Eardley-Pryor
Oral History Center, Bancroft Library, UC Berkeley
Embedding HIV into the Undergraduate College Course
Shan-Estelle Brown, Assistant Professor of Anthropology. Co-coordinator, Global Health Program, Rollins College
Panel 6: AIDS and the Power of Art
Documenting from Inside the Pandemic: AIDS and the Power of Art
Nancer Lemoins, KALA Institute
Sharon Siskin
Jeannie O’Connor
Archive as Cure: The Promises of Visual AIDS Activist Archiving
Marika Cifor, Information School, University of Washington
Closing Remarks
Dr. Monica Ghandi
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